Be prepared..

IMG_6998Ever since the day my daughter was born, she has proven to be unfailingly … unpredictable. If I thought she would act a certain way, she would always pick the other. If I thought she would do great at something, she would refuse to try. She was SO unpredictable.. it was almost predictable..

As a young mother, I decided I was going to rock my infant daughter to sleep every night (because my wise mother had not allowed us to rock our baby brothers)… At 3 weeks old? At 3 weeks old, my daughter decided she had enough of that. She screamed until I laid her in her bed. She peacefully fell asleep on her own. This pattern continued with having to feed herself.. dress herself.. pick her own clothes. What ever I thought she would choose? She would suddenly chose something else.

I decided early on.. I was going to have to be prepared for anything.

My motto became… BE PREPARED!

I remember one camping trip fondly. My daughter was 2.. and fairer than any child I had ever seen. So I dressed her in a swimsuit.. in case she got wet in the wash tubs again.. or got too close to the water pumps… or “accidentally” spilled her juice on her clothes again. Then I slathered her from head to toe in a strong sunscreen.. that way I wouldn’t have to call out to her to stay in the shade.  Setting her down outside the tent, I then sprayed her with bug spray .. so the mosquitoes wouldn’t carry her away.

With a nod of satisfaction… satisfied that I had been as prepared as I possibly could be.. I turned back into the tent to prepare my second born.. my easy going son.

I had only JUST started dressing my son… when the laughter started. I am not talking about cute giggles. I don’t even mean a short laugh of amusement… This was full blown laughter.. and it was coming from the adults in our camping group. Trying to catch his breath, my husband called out, “Hey honey.. come here a minute… and… and bring the camera.”

Scrambling toward the door… I stepped outside to see my beautiful blond haired child.. covered in black dirt… from head to toe. While I was preparing to protect my daughter’s porcelain complexion, I happened to create the perfect glue. So perfect in fact, that when she laid down and rolled around in that dark sandy black soil? It stuck instantly to her.

And in the middle of that dirt caked face? A beautiful smile…

So I laughed with my family.. and reached for the camera. But I vowed.. I would be better prepared next time.

Then one night, I tucked my second grade daughter into bed.. and reached for the book on her night stand. Startled, I realized it wasn’t the same book that I had been reading to her.. It wasn’t the book I had been reading to her every night for the last week..one chapter at a time.

“Where is the book we were reading yesterday?” I asked her, confused.

“Oh I finished that one .. that is the next one in the series,” she replied nonchalantly.

“You finished it?” I repeated, still confused. “How? We only read chapter 10 last night..”

Taking a deep patient breath, my daughter replied.. “You left off where it was getting good.. I had to know how it would end. So I took it to school today,” she finished with a shrug.

“But we were reading it together,” I stated bewildered.

“You go ahead and finish it,” she encouraged. “But tonight you can start this one.” Pointing to the book I held in my hand.

In that moment? In that moment, I realized I was never going to be fully prepared. I was always going to be surprised by her.

So I decided…

I would go on being prepared.. but I needed to let the control go. Or at least the illusion of control. You see?!?  I never really had control. And I knew that I needed to just let the rest go.. I needed to let the NEED to feel prepared for ANYthing go.. and just lean on faith.

Now that my daughter is a teenager.. YUP.. she is still unpredictable.. But she no longer surprises me every time. We have come to expect her to be unpredictable. Always taking her two choices.. knowing that she will choice the only option we didn’t offer… We have just come to expect it.

So my new motto has become.. BE prepared and leave the rest to God..

This works for me.. most of the time. I still prepare myself for several scenarios… and occasionally I am still surprised by the unexpected. And occasionally? Occasionally, I am unprepared for it.

No matter how many times I talk myself through it? I am always surprised when someone lets me down. When someone that I look up to, behaves in a way I could not predict… in a way that disappoints me… it always takes me by surprise. I have to force myself to give that surprise back to God.. and to lean on faith. Faith that THAT person is dealing with unpredictable surprises of their own. The faith that everyone needs understanding.

It works well.. until the next time.

Recently, my family had something happen.. that none of us were expecting.. and we certainly weren’t prepared.

My youngest brother and his wife have a 3 year old son. Beautiful 3 year old boy.. with a beautiful soul.  As he progressed through his “terrible” 3’s? We, as a family, prepared to help guide the independence.. we prepared to keep a straight face when funny sassafras came out of his independent mouth… we prepared to pretend to be firm when needed. We all want this amazing boy to be the BEST that he can possibly be.. so we prepared to support his parents when needed.

But we prepared for the wrong thing…

My nephew was diagnosed with NF this spring. NF stands for Neurofibromatosis. A genetic disorder that we all believed to be characterized by large birthmarks .. and cyst growth on the skin. Again we prepared.. we prepared to make him feel comfortable in his skin. With these growths.

But again.. we prepared for the wrong thing…

Neurofibromatosis (NF) can cause tumors to grow on nerves… and cysts on bones… and anywhere.. on any organ system in the body.

My nephew? Well this beautiful  3 year old boy has cysts growing on his leg bones.. causing so much pain that he can’t sleep.

We weren’t prepared for that….

Then through a routine eye exam, they found what the specialists knew could happen. A non-cancerous tumor growing on his optic nerve.. behind his eye. Non-cancerous prepares our hearts to not be scared. But in fact, these tumors are too risky to operate on. When left unchecked, a growing tumor can damage his eye sight. The solution?

Chemotherapy.

Our beautiful, sweet, amazing nephew… needs chemotherapy..

We weren’t prepared for that either…

I don’t think anyone could be prepared for that…

“To everything there is a season, A time for every purpose under heaven: A time to be born, and a time to die; A time to plant, and a time to pluck what is planted; A time to kill, and a time to heal; A time to break down, and a time to build up; A time to weep, and a time to laugh; A time to mourn; and a time to dance;”  Ecclesiates 3:1-4

God has never promised us a perfect life… and it is not even close. But He has given us other promises. Promises to give us strength.. promises that we need not fear what He has planned for us.. promises that all things will make sense someday. And in these verses.. He tells us that after the tears.. there will again be laughter. Sometimes that laughter comes in the middle of the tears.. like a rainbow in the midst of a storm. Sometimes… it’s much later… after the storm is but a memory.

I don’t think we will be able to fully prepare this young boy …or ourselves… for the next 18 months.. But we can definitely try .. The rest? The rest we will have to take on faith. Faith that God will be there and get us through what we aren’t prepared for. That he will get this young boy and his parents through whatever they aren’t prepared for.

I have a feeling that my nephew will be more prepared for his chemotherapy treatments then us adults will be. After all.. he has 2 amazing parents with a deep faith in God. But it is always hard to see a child struggle through hard treatments.

So this week? This week was my time to weep.. and it was my time to break down.

But next week? I am praying that next week will begin the time of healing for my nephew.. and a time for laughter.. and a time to build up .. To build up in preparation for this road we will travel with this beautiful boy.. and his parents..

And in 18 months… I am praying it will be our time to dance…

5 thoughts on “Be prepared..”

  1. I am speechless, and heavy hearted for Westley and his parents and all of us as his extended family. Thank you for the beauty of. Your written words and declaration of faith and courage in the face of this unspeakable trial. Lord Jesus please show mercy on this beautiful, inside and out, child that has been created by You in Your image. I pray healing and strength over this precious child. Your grace , umerited favor , over Mark and Nicole and Westley, if it be Your will oh Lord let this cup pass from them. Day by day and with each passing moment, give them strength to meet their trials, trusting in our Father’s wise bestowment, Let them have no need for worry or for fear.AMEN!

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  2. I’m so emotional I don’t even know what to say I don’t know what will happen and I’m scared for my happy little cousin and his heath and his happiness I feel like my part of my little world has caved in and like you said I’m not prepared for what’s to come but I know that God is

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